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You are right Tristam, usually any form of new medication has to go through rigorous clinical trials with the FDA before it is approved. The trials can take many many years to perfect till they put their stamp on it.

I think the new trippy form of medical procedure is the use of nanotechnology. I was reading the San Francisco Chronicle a couple weeks ago and there was an article about how a company wants to inject patients with these molecular machines that attach to cancerous cells. These things display a certain light using Rammun (I think that's how it is spelled) lighting which then indicates if a person has cancer in a particular area. I mean shit... molecular machines floating in your body to target and attack bacteria or cancer sounds pretty cool but a little unnerving at the same time lol.
 
Rayn said:
You are right Tristam, usually any form of new medication has to go through rigorous clinical trials with the FDA before it is approved. The trials can take many many years to perfect till they put their stamp on it.

I think the new trippy form of medical procedure is the use of nanotechnology. I was reading the San Francisco Chronicle a couple weeks ago and there was an article about how a company wants to inject patients with these molecular machines that attach to cancerous cells. These things display a certain light using Rammun (I think that's how it is spelled) lighting which then indicates if a person has cancer in a particular area. I mean shit... molecular machines floating in your body to target and attack bacteria or cancer sounds pretty cool but a little unnerving at the same time lol.
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Read "Prey" by Michael Crichton. I know, lolMichael Crichton, but the concepts are the same. Nanotech kinda scares me in that respect.

Back on-topic: Myrrh, live daily not like it is your last, but like it is your first. My meaning? See things as if you have never seen them before.
 
My ex boyfriends sister had MS. Since she was 16. Up until her last day she was still having a great life. Her last birthday she even went to a strip club, imagine getting a lapdance in a wheelchair. She died happy in her late 30's. It probably helped her live longer than she would have if she were miserable and spiteful about it.

Even so, not every life threatening ailment is completely noticeable or even close to treatable. My sister and I have an ailment that no one else in our family has ever had. The worst thing to hear from anyone is "stop exaggerating" or "you're perfectly healthy" just because they don't "see" anything wrong with you.

Live your life the way you want it, and if it ends early, you better have damn well made it worth living at all.
 
Muscular Schelerosis?(sp)

I heard it severly weakens the muscles and makes them eventually unable to use but I never heard it being fatal.
 
Myrrh, don't you already live life to the fullest? I've heard legends about your epic fap-a-thons.

Joking aside, it's certainly not unrealistic to think that one might withhold cures to said diseases, because it is clearly going to make SOMEONE more money.. but I like to think that the government wouldn't do that to us. Call me naive, or whatever you want, but I would much rather just relax and live my life without worrying about any sort of conspiracies or such nonsense.

I like Mirewen's example, seems to make a lot of sense, to me at least.
 
K. Ishitar said:
Muscular Schelerosis?(sp)

I heard it severly weakens the muscles and makes them eventually unable to use but I never heard it being fatal.
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She couldn't see, could barely hear, couldn't talk and couldn't really move. The only sense she really had left was smell. We bought her perfume every Christmas. Because she could kind of hear, we had a music box made for her as well. She still made the best of it, we know because she could still smile.
 
i've thought about this more then enough times myself. I don't personally with a illness such as CF or MS so i dont know what its like to see someone go thoutgh that everyday. But i agree with what has been said here. Life will continue for every day you draw breath. Untill you draw that last one enjoy it doing what makes you happy.
 
K. Ishitar said:
Muscular Schelerosis?(sp)

I heard it severly weakens the muscles and makes them eventually unable to use but I never heard it being fatal.
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From the National MS Society site: "In rare cases MS is so malignantly progressive it is terminal, but most people with MS have a normal or near-normal life expectancy. Severe MS can shorten life."

I think the point is not so much whether a disease is fatal but about the quality of life you're living if you're affected by it.
 
She lived in a home but because it basically shut everything down, all of her major organs pretty much gave up. You see people living with it quite comfortably. Montel for example.
 
Is MS a disease or is it like CF where it's more of a birth defect? I don't really know much about MS.
 
Myrrh said:
Is MS a disease or is it like CF where it's more of a birth defect? I don't really know much about MS.
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I would say MS is a disease. It's classified as autoimmune disease I believe. Basically, the immune system attacks the central nervous system.
 
Lyrai said:
For something like CF that's genetically linked, it's really something that could be treated with gene therapy that's already in it's early stages. It's something they're working on, and there have been several clinical trials. You're young enough to where you're getting the best treatment that's available now, and that you should see better treatments come out in the near future.

The catch is though, is that you can't just be passive about it, you have to be demanding about what you want and yes, don't let your illness run your life. Be in charge of your life, keep a notebook when you visit the doctor because you can't always rely on them to have accurate records. Regardless of what you have, it's always important to stay healthy and as active as you can.
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i read something about this where they take a common cold virus take out the chromosomes that make you ill and replace it with chromosomes that a person with cf lacks. they then introduce the virus into the person with cf and it "infects" them with the good chromosomes making thier lungs healthy again but i think a it years away for testing in humans yet
 
This is a sad thread. I'd like to think that medicine will be so advanced one day and that many diseases will come extinct. Cancer as well. People say we could never find a cure for AIDS, but I just think we can do SO MUCH MORE still that you can't say never if you just don't know our full potential.

I think I said that right.
 
Tristam Green said:
Read "Prey" by Michael Crichton. I know, lolMichael Crichton, but the concepts are the same. Nanotech kinda scares me in that respect.

Back on-topic: Myrrh, live daily not like it is your last, but like it is your first. My meaning? See things as if you have never seen them before.
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I don't know why but anyone that mentions that book makes me sad /_\. The kind of nanotech that is being developed is so incredibly different than the cyborg stuff that book is talking about.

Tristam, this is the first time in a while you have let me down =(.
 
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